Autonomy Project survey explores human rights in care homes | University of Essex

An ongoing Essex-led survey of care professionals will shed further light on concerns raised by the Care Quality Commission that Do Not Attempt CPR (DNACPR) orders in care homes have breached the human rights of residents.

The Survey of Care Home Professionals has so far surveyed more than 220 medical, social care, legal and advocacy staff working in or with care homes, and researchers in the School of Philosophy and Art History are hoping more will complete the survey before it closes on 4 April.

The survey, which launched at the start of the month, asks respondents questions relating to restrictions on movement and visits, access to services, the use of DNACPR orders, and the usefulness of guidance for practice.

Dr Margot Kuylen, Senior Research Officer, said: “Throughout the pandemic, there have been reports that the pandemic has interfered with the human rights of care home residents in the UK. This survey will help us understand better what has been happening on the frontline, and will provide some quantitative data to supplement the many anecdotal accounts that have appeared in the media.”

The survey is part of the Human Rights in Care Homes project, led by Professor Wayne Martin and funded by the Arts and Humanities Research Council (AHRC) as part of the UK Research and Innovation (UKRI) COVID Rolling Call.

Dr Margot Kuylen
“Together with the findings from the focus groups, the survey results will be used to help both care professionals and policy makers protect human rights in care homes going forward.”
Dr Margot Kuylen school of philosophy and art history

The survey will be followed by a series of focus groups with selected care professionals, who will have an opportunity to explore the issues brought to light by the survey.

Dr Kuylen added: “Together with the findings from the focus groups, the survey results will be used to help both care professionals and policy makers protect human rights in care homes going forward.”

The research team plan to use the findings to develop a training curriculum for frontline care workers and will publish their final report on the findings later this spring.

The Human Rights in Care Homes project is part of the Essex Autonomy Project which explores the challenges associated with frontline practice in medicine, psychiatry, social work and law, and develops strategies to ensure respect for autonomy and human rights in care contexts.

Complete the survey.

Source: Autonomy Project survey explores human rights in care homes | University of Essex

“Together with the findings from the focus groups, the survey results will be used to help both care professionals and policy makers protect human rights in care homes going forward.”

Published by Residential Forum

The Residential Forum is to promote the achievement of high standards of care and support for children and adults living in residential care and nursing homes, supported housing, residential schools and colleges, hospices and hostels. It contributes to improving the quality of service to the public. Members of the Forum are people of standing and experience drawn from the public, private and voluntary sectors, as well as some who can speak for service users and carers.

3 thoughts on “Autonomy Project survey explores human rights in care homes | University of Essex

  1. How do you know those you ask will tell the truth?
    Why aren’t you asking asking relatives of residents of the atrocity that they have experienced and witnessed and the breaches in infection control procedures, theft of possessions and abuse of human rights to family and privacy
    We are suffering from PTSD for a year of psychological torture
    We have been lied to by poor care home managers so would be sceptical even if anonymous of what you will hear

    Liked by 1 person

    1. Jane
      Why don’t you contact the Survey Team? It appears that the research they are doing relates to understanding professionals – which is useful. It really depends what they are looking to learn. They say: “The Human Rights in Care Homes project is part of the Essex Autonomy Project which explores the challenges associated with frontline practice in medicine, psychiatry, social work and law, and develops strategies to ensure respect for autonomy and human rights in care contexts”.
      If we get the chance we will pass on your comments and draw attention to https://www.unlock-carehomes.co.uk/ and the survey there.
      Thanks for taking the time to comment.
      Residential Forum.

      Liked by 1 person

  2. How do you know those you ask will tell the truth?
    Why aren’t you asking asking relatives of residents of the atrocity that they have experienced and witnessed and the breaches in infection control procedures, theft of possessions and abuse of human rights to family and privacy
    We are suffering from PTSD for a year of psychological torture
    We have been lied to by poor care home managers so would be sceptical even if anonymous of what you will hear
    Read our Facebook page comments or tweets at @careunlock for what we have seen and what our loved ones have suffered many died without seeing or talking to family for 9-12 months
    Some care homes have been amazing enabling safe family asccess as essential care giver with full PPE and tests/ others slammed their door shut and others offer minimum – my mum is EOL and I get 1 hour supervised visit a week – barbaric
    Mum is bedbound dementia can hardly see/hear/talk with an sneurysm which could burst fatally at anytime – she should be allowed a happy death with family 💔🩸💔

    Liked by 1 person

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